My journey through Lyme Disease- Healing my body and mind.

My Recovery

Lyndsey ridgetrail

I have been in treatment for 10 months and am slowly making awesome progress! I still have bad days with a flare in symptoms that can cause me to have to stay in bed, but those days are becoming fewer and far between. I cannot predict when my symptoms will get worse, other than if I put my body under unusual emotional or physical stress. For this reason, it makes planning things a little tricky since I never really know when things could get bad. So, I have kept myself out of field work and have adopted a much better ability to “roll with it” than I had before.

The amount of exercise I am able to tolerate is slowly increasing. I can easily do moderate hikes now, can tolerate once a week kettlebell lifting, and about twice a month I can even go on easy, slow, and short bike rides! Even though I am not the athlete that I was before this illness, I feel SO fortunate to be able to have such a great quality of life despite chronic infection. I am so thankful!

A few things that have helped keep me sane during my recovery have been: journaling, learning about nutrition and how to cook clean food, learning to knit, learning to play the ukulele, painting for the first time in my life, learning about traditional kettlebell lifting and participating in a kettlebell class once a week at Jogo CrossFit Bellingham (thanks to my wonderful coaches), training and playing with my puppy, and most importantly, spending time with my partner, Jason. I truly don’t know what I would do without him.

My symptom list has deminished to the following (all with less frequency as before):

  • Migrating joint, back, and muscle pain
  • Inflamed nerves and migrating nerve pain
  • Migraines
  • Mild dizziness that comes and goes
  • Fatigue
  • Vibrating feeling in head/neck
  • Involuntary twitching of head (very rare now)
  • Muscle weakness in left leg and foot
  • Occasional swollen, red, and painful toes on left foot; sore feet
  • Intense exercise intolerance (can tolerate light to medium intensity exercise- yay!)
  • Occasional night sweats
  • Occasional cognitive dysfunction (very infrequent)

That is a WAY shorter list! Hooray! I look back on pictures of things I did over the past two years and can only think about how horrible I felt all the time. I hid my symptoms well, but I was really suffering. I still have bad days or sometimes weeks, but it does not even begin to compare to how I felt before beginning treatment. I will likely be in treatment for a minimum of another year (average for Late-Stage Lyme Disease is 2 to 5 years in treatment). I look forward to the progress I will continue to make and am excited to be spending more time outside doing the things that I love. Yes, I will likely always have Lyme Disease. Studies have shown that we are not able to completely eliminate the bacteria from the body, but with treatment, diet modification, and stress management, I will be able to get my symptoms under control and have my life back! It feels so amazing to be able to think again!

Here’s to healing! Thank you!

8 responses to “My Recovery

  1. Do you have an email where u can be reached?

  2. Ron Gwaldis says:

    Hi my name is Ron I know Nikki and she gave me your web site I read it and was very interested in how your new results in what your doing for your lime condition I have a nice back in pensilvinia and she has been fighting Lyme she is 10years old and not doing well she can not remember things from yesterday and in pain a lot so if you can tell me your results of the test your doing and soon as possible I would very much appreciate it very much Nikki speaks very highly of you and I’m very happy for you getting better thank you ron

    • lilneeds says:

      Hi again, Ron-
      I feel that I was definitely helped by Dr. Smith’s treatments. However, I can’t give a concrete report quite yet, because I have to return to see him for one more treatment, then wait a month or two, before I can really say how effective it has been for me. I tell everyone, though, that the treatment is comparitively inexpensive and is harmless to the body. So, before I tell folks to go the antibiotic route, I suggest going to see Dr. Smith and seeing how they do with him first. So far, I’ve had several people report back to me and say that his treatment has them feeling drastically better. Lyme is such a hard infection to treat and the antibiotic route is a long and ugly one (I know, that’s what I have been doing for the past two years), so I say give Dr. Smith a chance. There is hope!

  3. Michele Conley says:

    Can you please email me the name of doctor in Seattle. I live in Spokane. Does she take insurance?. Did Tony Smith in cda help you?
    Thanks, Michele

  4. Paul bialas says:

    Hi Michele, in hind site what are your thoughts on dr. Tony smith?

    • lilneeds says:

      I think Dr. Smith has helped a TON of people. I think he helped me, but did not heal me 100%. Definitely worth a try since some folks seem to have miraculous recovery after his treatment.

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