lymeoutlyndsey

My journey through Lyme Disease- Healing my body and mind.

LYME RECOVERY UPDATE and a note to those still suffering

on July 19, 2014

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Hi friends! It’s been a long time since I’ve updated this blog and it’s because I’ve been out having FUN and LIVING life! Yay! I am now 2.5 years into treatment for Late-Stage Lyme Disease and am recovering really well. My exercise tolerance and energy level has increased dramatically over the past 3 months. Just as an example, this morning I went to my kettlebell sport class, then went to brunch with some friends, then had enough energy to come home and clean the house (including scrubbing the bathtub). Just 1 year ago, that would have been impossible. I am so grateful to have had such incredible improvement recently. I am still in treatment with my doctor in Seattle. Still on antibiotics and lots of supplements. Also, I had another Lymestop treatment with Dr. Smith at the end of April. I have had a lot of questions about what I think is definitively responsible for my recovery and my honest answer is: I don’t know. I wish I could tell you 100% what has worked so well for me, but since I am doing so many things at the same time, it’s impossible to know. My current treatment regiment includes: antibiotic and enzyme therapy, Lymestop treatment, drinking Asea, exercise, eating a healthy diet, regular infrared sauna treatments, Rolfing, chiropractic care, and regular somatic psychotherapy appointments. I will do another blog post soon about my thoughts on the effectiveness of each of those treatment modalities. I think the combination of many things has been necessary for my recovery. I wish I could give answers to you all about what may be effective for you, but the truth is, you have to listen to your body and find out for yourself.

Lately, I will have days where Lyme Disease doesn’t even cross my mind. I mean, I’m still a slave to pills 11 times a day, but I don’t actually think about how sick I am, because I’m not! It’s truly incredible. The other day, I took my dog to walk a loop that I used to have to break up into segments and sit and rest between slow painful walking intervals; and not only did I have enough energy to walk the entire thing, I started to RUN! I got a couple of minutes into my run and I felt fear start to creep in. Fear that I was going to start hurting soon and that my energy was going to drain and I would have to sleep for the rest of the day. But, as I kept running, I realized that the pain was not coming back and that with each step, I felt MORE energetic. At that moment, I started sobbing in the middle of the woods. (Sobbing and jogging = awesome combo! Ha!) It was like some incredible cloud had lifted. Like I had been released from jail. My joints moved freely and my heart beat to a regular rhythm instead of painful palpitations. I cried out of joy and disbelief. I cried because it has been a long difficult journey to this point.

I also cried because I thought of all of those out there still suffering. Living in pain with no sign of relief. I cried for them knowing that they have a long journey ahead. Knowing that some of them may never get relief. I cried because I wish I could change the effects of this terrible infection, but I can’t. I know you are out there and I know you feel alone. I know you think there is no hope, but I am here to say that there IS! I started running faster and starting running not just for myself, but for all of you out there who are still looking for answers. All of you who would do anything to be able to simply walk around the block. My thoughts go out to you and I hope and pray that you find answers. That you find what works for you. That we will no longer be ignored by the medical mainstream. That the scientific community will put more effort into Lyme Disease research. I am here to say that recovery is possible. You have to do everything in  your power to get better, but it can happen.

Do I know that ALL people can recover as well as I have from Late-Stage Lyme Disease? No. I don’t. Every body is different and every body responds differently to different therapies. All I can do is hope that you find something that works for you and be grateful that I have found what works for me. And trust me, I am fully aware of how lucky I am to be recovering so well from this ugly illness. I wish it were the same for everyone. I know it may not be, but I also know that there are more people out there than you think that are beating this thing! The internet is full of horror stories, because when people start to get well, they are out living their lives instead of posting on the internet. I know that is true for me. So hang in there.

I do still have hard days when I change medications, so I am still actively fighting; but I feel that I am well on my way to remission. Lyme Disease will be something that I manage forever, but I am living a fantastic life. Thank you to everyone who has helped me get to where I am today. I look forward to spending more time doing the active things I love.

I am afraid to announce that I am a Lyme “Success Story”, but I think I just might be. To all of you still suffering: have HOPE!

Love,

Lyndsey


11 responses to “LYME RECOVERY UPDATE and a note to those still suffering

  1. Andi says:

    Hi Lyndsey! I just discovered your blog and find you to be such an inspiration. I am 25 years old and have had Lymes for 7+ years. It has been nothing short of an extremely difficult journey. I am on the healing side of things and am currently thinking of going to LymeStop. I’m so glad that I found your blog and to hear that you’re out living life is amazing:). I can’t wait to get there too. Wishing you all the best, Andi

    • lilneeds says:

      Hi Andi!
      Thank you! It is amazing to be feeling so much better. I am so happy to hear that you are starting to recover. If you can afford it, you should go do Lymestop. Dr. Smith seems to be helping a lot of people beat this thing. I am hoping for the best for you! You can do it! ❤

      • Andi says:

        Thank you for the encouragement! It all costs a small fortune doesn’t it?! I’m definitely considering it and just wrote them an email:). xx

  2. Anne says:

    Hi Lyndsay,

    I was looking into the Lymestop treatment ($300 eek!) and am wondering if you are taking supplements that Dr. Smith has recommended in addition to having the Lymestop treatment and if so what they might be?

    Thanks,
    Anne

  3. Anne says:

    I mean $3000 eek! not $300!!

    Anne

  4. lilneeds says:

    I did take the supplements from Dr. Smith. They will vary depending on what you may need. I think he gave me zinc, dopaboost, and a liver enzyme. It’s expensive, but if it’s the only treatment you do and it works, it’s WAY cheaper than years of antibiotic therapy.

    • Christina says:

      I’m also wondering about the price. I am going in a few weeks and he diagnosed my entire family with Lyme. It is hard to pay $3,000 times four people when I hear of other people who spent $1,000-1,500 just a year ago. Why the dramatic price jump? Did he include the supplements with the program when he was charging less?

      • lilneeds says:

        No. He did not include the supplements in the price when I went a couple of years ago. That is one reason why the price has increased, but otherwise, I have no idea. I can’t speak for their financial decisions. I do know that his staff has doubled since the first time I saw him. Maybe that’s part of it, too? Who knows. Good luck with your treatment! Hope it helps!

  5. ksmargeson says:

    I read your old posts sometimes just for inspiration 🙂 I’m so grateful you documented so much. I honestly don’t think I’d have gotten to this path as quickly or with as much certainty without your writing. Thank you!

  6. Amanda says:

    Hey thanks for your supportive msg! How are you doing now? 🙂

    • lilneeds says:

      Hey Amanda- I am doing quite well now! I am back to working full time and am mountain biking, dirt biking, and working out just fine. I’ve been off of treatment for over 6 months and appear to be maintaining remission. Hooray! 🙂

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