lymeoutlyndsey

My journey through Lyme Disease- Healing my body and mind.

Hope through new challenges

on March 4, 2013

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Please click on the DONATE link on the sidebar to donate via paypal or snail mail. Subscribe to this blog (click “follow”) to recieve updates about my progress and fundraising goals.  THANK YOU!!

 

Hello everyone! The past week has been absolutely incredible! Thanks to all of you amazing people out there, I have now raised enough money to pay for nearly 5 months of treatment. Still a minimum of an additional 6 months to go, so please keep sharing my blog wherever you can. Also, click “follow” on my blog (you may have to quickly set up a free wordpress account) to get updates on my progress, fundraising activities, and more tips and education on Lyme Disease. Help me become a Late-Stage Lyme success story!

I cannot say thank you enough. Really. It has been such an awesome experience having people from around the world (68 countries, to be exact!) view my blog and contribute when they can. Remember, if you can’t contribute financially, sharing the information with someone else is extremely important. Spread the awareness! I am going to be sharing more personal stories of my daily struggles and/or successes with Late-Stage Lyme in an effort to inform and help others who are in the same boat. It’s not easy to share such personal information, but based on the response that I have gotten thus far, I think it may be helpful for others. You’re about to know a lot more about my life, ready or not. 😉

I have been doing pretty well over the past week. I was able to do some light field work for my job and felt really alert and energetic. I also was able to do a more intense workout at my kettlebell class on Wednesday with no apparent negative effects.  YAY! It feels so good to MOVE.

Friday came around and brought some massive fatigue and some new symptoms along with familiar ones. My feet have been swelling quite a bit and are painful to stand on, especially in the morning. I have gotten red blisters on the end of some of my toes and the joints occassionally turn purple. I have also had pain in my shins and lower legs. These are classic symptoms of my co-infection, Bartonella henslae. Remember, a lot of people with Lyme are infected with not just the Lyme bacteria, Borrelia burgdorferi, but several other co-infections from the same tick. Bartonella is a common co-infection. I am on doxycycline to hopefully target the Bartonella.

I have also recently developed pretty intense acid reflux and digestive problems. It hurts to swallow (bubble-in-my-throat feeling), I become full really quickly, and if I eat a “normal” amount of food I get really nauseous. I am investigating treatments for these new symptoms and have hope that they will resolve soon.

On a positive note, I was able to go for a mountain bike ride yesterday with my dear friends, Sean and Nikki. The climb was slow and difficult, of course, but I made it all the way to the top with a smile still on my face. The descent was really fun! My focus was good until about halfway down when the brainfog started to creep in a little. My muscles work pretty well until they reach a certain point and then they just seem to shut off entirely. So, on the last little climb up the hill, Sean rigged a tow line for me using their dogs leash and helped me up. Yay for friends! I was exhausted, but it was really fun to play on dirt and BONUS: the sun was shining! Woot!

Hugs, Lyndsey

 


2 responses to “Hope through new challenges

  1. Could you try a little Apple Cider Vinegar for your reflux? :o)

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